After studying Pharmacy, Mariano Viedma though that he would work in nutrition, but we end up in Barcelona, where he worked for two large companies for twelve years. He used his knowledge in Pharmacy to set up Inves Biofarm, in Granada, a company that develops and manufactures orphan drugs, developed to treat a rare medical […]
rare diseases
Encuentros con Rubén: short stories which reflect the fight of a child against a rare disease
Writing has been his refuge. Rubén, who is barely 10 years old, has published his first book of short stories with the aim of raising funds to help her mother to afford the expenses generated by the rare disease he suffers since he was born and that forces him to receive chemotherapy every two weeks. […]
BrainCure: crowdfunding to find a cure for ultra-rare disease NBIA
NBIA is a rare and neurodegenerative disease which affects 35 people in Spain, caused by the accumulation of iron in brain cells. Amongst the symptoms are involuntary movements, dementia, and ingestion problems. Scientists at the Andalusian Centre for Developmental Biology have been working for some time to find a cure for this disease. It is […]
Join Antonio: an injection of energy and hope in the face of rare disease
Antonio, a three year old boy from Seville, is one of 8 people in the world to have TK2-related DNA Depletion Syndrome, Myopathic Form, classified as a rare disease due to its scarce prevalence. 6 months ago, he was in a critical situation, however his parents researched and found an experimental treatment in the USA. […]