‘My Leaf’ is a mobile app that connects people affected by rare diseases. It also allows them to monitor their symptoms and treatments, generating information that is useful for researchers and doctors. 6% of the Spanish population is affected by a rare disease.
Francisca Sánchez from Malaga directs one of the leading groups in research into rare diseases, those that affect fewer than 5 out of every 10,000 people in Europe. The group at the University of Malaga forms part of the Rare Diseases Networking Biomedical Research Centre.
Antonio Bañón’s son was diagnosed with a rare disease, what threw himself into their study. This professor of Spanish Philology at the University of Almeria (Andalusia) is the promoter of the Observatory for Rare Diseases. It was founded in 2009, but it wasn’t until 2012, thanks to the support of the Spanish Federation of Rare […]
Jorge Ramos, Lebrija, has just become Andalusian Table Tennis junior champion. At barely 2 years old, he showed the first symptoms of an illness that caused necrosis from the top of both femurs. Then the diagnosis came in: Perthes disorder, a rare disease which affects one in 10,000 children. He went through various doctors, he […]