Antonio Bañón, a determined impulse towards the social view of rare diseases

rare diseases

Antonio Bañón’s son was diagnosed with a rare disease, what threw himself into their study. This professor of Spanish Philology at the University of Almeria (Andalusia) is the promoter of the Observatory for Rare Diseases. It was founded in 2009, but it wasn’t until 2012, thanks to the support of the Spanish Federation of Rare […]

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Jorge Ramos, the Andalusian junior table tennis champion having overcome a rare illness

Jorge Ramos

Jorge Ramos, Lebrija, has just become Andalusian Table Tennis junior champion. At barely 2 years old, he showed the first symptoms of an illness that caused necrosis from the top of both femurs. Then the diagnosis came in: Perthes disorder, a rare disease which affects one in 10,000 children. He went through various doctors, he […]

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Mariano Viedma, orphan drugs based on cosmetics to combat rare diseases

orphan_drugs

After studying Pharmacy, Mariano Viedma though that he would work in nutrition, but we end up in Barcelona, where he worked for two large companies for twelve years. He used his knowledge in Pharmacy to set up Inves Biofarm, in Granada, a company that develops and manufactures orphan drugs, developed to treat a rare medical […]

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